Where can you get reliable information about Sjogren's Syndrome?

 

You may not know but this blog is connected to Sjogren's Syndrome Info which is a website that was founded when I was first diagnosed with sjogren's syndrome. Back then the rheumatologist who diagnosed me said 'Don't go looking on the internet as all you will find are horror images with swollen glands.' He was right in a way as there was not much reliable information. So that is why I started Sjogren's Syndrome Info. All the information there is from research done into the disease or sourced from other good websites. I check everything at least twice and provide sources. You can rely on the information to be correct. 

Some of the pages you will find there are:

• A list of worldwide support groups
• Nerve involvement in Sjogren's syndrome
• Books about Sjogren's syndrome
• How to protect your voice
• Undiagnosed Sjogren's
• List of symptoms
• Is there any treatment for Sjogren's syndrome?

Of course there are other pages where people share their own personal stories about sjogren's:

• Personal stories
• World Sjogren's Day awareness campaign

I hope you can visit the site and that you find some useful and reliable information there to help you. As many of the pages have source information they are links that you could share with your family or, more importantly, your doctor so that they understand what you are experiencing. As you know Sjogren's is not just dry eyes and dry mouth. Of course you may have a wonderful doctor who understands all about this complex condition.