The Coronavirus Vaccine Side Effects Poll for people with Sjogren's (SS), autoimmune conditions and fibromyalgia

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This is an anonymous survey to monitor the reactions of the Covid-19 vaccines in people with either an autoimmune condition or fibromyalgia. 

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The Coronavirus Vaccine Side Effects Poll for people with Sjogren's (SS), autoimmune conditions and fibromyalgia

Comments

  1. Renu RoyOctober 10, 2021 at 8:20 AM

    I'm blessed not to have had Any severe effects. Sore arm and fatigue for about four days. That was five months ago. My SS symptoms by God's grace are not severe. I do have constant fatigue, dizziness and and weakness .

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    1. GoodOctober 12, 2021 at 8:49 PM

      Thanks for taking the survey. It seems that your reactions are quite typical in people with sjogren's.

      Delete
  2. Ova YondaOctober 12, 2021 at 3:28 AM

    The vaccine almost killed me. I had very severe side effects and ended up in the hospital. It caused heart problems, myocarditis. I've never had heart trouble before. I had severe abdominal pain, the chills, and nausea. I was never able to take the second shot after having such a bad reaction to the first shot.

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    1. GoodOctober 12, 2021 at 8:52 PM

      Hi Ova, I hope you are feeling better now. Thank you for letting us know of your severe reactions. It must have been very frightening. I hope the issues are not ongoing and you got the support you needed. Thanks for taking the survey.

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  3. UnknownOctober 12, 2021 at 3:49 AM

    After I had taken the first shot the next day I was in chronic pain. It was my muscles located my legs. I could barely walk. I contact my primary to make him aware of what was going on. I was prescribed Tylenol with Codeine for the pain. After one week the pain subsided.

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  4. UnknownOctober 12, 2021 at 3:56 AM

    I had absolutely no side effects, not even pain from site of injection

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    1. GoodOctober 12, 2021 at 8:53 PM

      Wonderful to hear this. Thanks for your input.

      Delete
  5. UnknownOctober 12, 2021 at 9:32 AM

    I had some temporary issues from the second vaccination: headache & muscle pain.
    However, following a booster vaccination, Sept. 1st, I have continued to feel weakness, particularly in my thighs. This may just be coincidental, but it is still with me.

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    1. GoodOctober 12, 2021 at 8:55 PM

      That is interesting and also the concern that many people have... how do they or the doctors know if new symptoms are from the vaccine or not? I hope you improve soon.

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  6. UnknownOctober 15, 2021 at 6:18 PM

    At some point will you include questions for those of us denied or refused the vaccine? It would be interesting to how many of us there are. Personally, I was denied. Twice at 2 different places.

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    1. GoodNovember 4, 2021 at 7:44 PM

      Interesting, I would love to know why you were denied it.

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  7. UnknownNovember 4, 2021 at 10:45 AM

    I believe the second triggered a relapse of my MS. That Was5/17/21, and I am still in it. Still, having lost my sister to it, I would probably do it again. Though I am reluctant to get the booster...,😬

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    1. GoodNovember 4, 2021 at 7:46 PM

      So sorry about the loss of your sister and also the relapse of your MS. Sending strength to you across the miles.

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    2. UnknownDecember 7, 2021 at 8:33 PM

      ♥️

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  8. SwedeDecember 22, 2021 at 2:02 PM

    Pericarditis and purpura. Fatigue and then neuropathy. I couldn't start my new job. This lead to my diagnosis. Must have had Sjögren's subclinically and the shot triggered it. I am devestated.

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